http://www.facebook.com/SunflowerKidsforaCure
Can Mia get 1,000,000 fans to raise awarness of Neurofibromatosis? 8,948 people closer to our goal of 1,000,000. The half marathon is coming up & I am still overwhelmed at the number of people that Mia & I have reached. Not only that but I have raised $10,950.00 for this years run on Sept. 5th & still working on raising more. Again thank you for all the support & please suggest to all of your friends. The support is much needed & with your help we will continue to fight for a cure!on Monday
Tuesday, August 17, 2010
Children's Tumor Foundation
http://www.ctf.org/
Neurofibromatosis (NF) is the term for three distinct genetic disorders, NF1, NF2 and Schwannomatosis. Each causes tumors to grow on nerves throughout the body. Usually diagnosed in childhood, NF is a life-long disorder with a variety of potential; complications and variation in severity. NF affects both sexes and all races and ethnic groups equally, and is the more prevalent than cystic fibrosis, Duchenne muscular dystrophy and Huntington's disease combined.
Neurofibromatosis (NF) is the term for three distinct genetic disorders, NF1, NF2 and Schwannomatosis. Each causes tumors to grow on nerves throughout the body. Usually diagnosed in childhood, NF is a life-long disorder with a variety of potential; complications and variation in severity. NF affects both sexes and all races and ethnic groups equally, and is the more prevalent than cystic fibrosis, Duchenne muscular dystrophy and Huntington's disease combined.
Saturday, August 7, 2010
Sierra Trading Post
Looking for some great deals on clothing. Check out Sierra Trading Post. http://www.sierratradingpost.com/
What is NF
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 3,000 to 4,000 births).
NF has two genetically distinct forms: NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified.
NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.
Joseph Merrick, whose condition was depicted in the play and film, The Elephant Man, is often incorrectly thought to have had neurofibromatosis. Merrick's condition has been identified as Proteus Syndrome, a disorder similar to NF, but unrelated. To learn more about Proteus Syndrome, please visit the Proteus Syndrome Foundation's website. http://www.nfinc.org/what.shtml
NF has two genetically distinct forms: NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified.
NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.
Joseph Merrick, whose condition was depicted in the play and film, The Elephant Man, is often incorrectly thought to have had neurofibromatosis. Merrick's condition has been identified as Proteus Syndrome, a disorder similar to NF, but unrelated. To learn more about Proteus Syndrome, please visit the Proteus Syndrome Foundation's website. http://www.nfinc.org/what.shtml
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